Mother of baby with spinal muscular atrophy wants all newborns to be tested for it
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Dannie Aildasani is the Web Editor for Young Post. She has previously lived and worked in South Korea, Ecuador and the United States, and has a Master's degree in International and Public Affairs from the University of Hong Kong.
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The mother of baby boy, who had 22 medical appointments with nine different doctors before being diagnosed with a rare genetic condition, wants all newborns to be tested for it.
Chester was eight months old when his parents were finally told the condition that meant he couldn’t swallow or move his legs and left him constantly distressed was spinal muscular atrophy, or SMA.